James told me the tumor they removed weighed eight pounds! James set a new record at the UW hospital for most units of blood needed-- 28!! We weren't going for any records!
We both also have NF. (Dave's is slightly disfiguring) We are soooooo thankful you were able to have the surgery. The support you have had is amazing. We just wanted to let you know we are thinking of you. Let's all keep getting the word out about NF!!
James was born with Neurofibromatosis. As a child he had surgery pretty much every year to keep up with the growths on his face. His dad would take the family on a summer vacation after his surgeries so he could recover and have fun. When he turned 18 he didn't have any more insurance to cover more surgeries. The tumors have stopped growing now and he would love to have the last procedures done. Several years ago he was told that his insurance company wouldn't cover it because he was born with the condition, so we are working toward a goal of $50,000 to cover the cost of treatment and recovery. We really won't know how much money is needed until he is thoroughly evaluated, but James is very excited that we have taken this project on, but I know he's a little leery of it actually happening. I am committed to doing everything I can to get him into the recovery room.
2 comments:
You look wonderful James! I love your new look.
James,
We both also have NF. (Dave's is slightly disfiguring) We are soooooo thankful you were able to have the surgery. The support you have had is amazing. We just wanted to let you know we are thinking of you. Let's all keep getting the word out about NF!!
Your fellow NF friends,
Dave and Toni
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